Type 1 Diabetes Warning Signs & Realities: What Every Parent Should Know

5 minute read

Type 1 diabetes doesn’t discriminate—it can affect anyone, even the healthiest and most active individuals. When our son was diagnosed as an adult, we quickly realized how often this condition is misunderstood. Adult-onset Type 1 diabetes is rare and frequently misdiagnosed as Type 2. Unlike Type 2 diabetes, which is often influenced by diet and lifestyle, Type 1 diabetes is an autoimmune disease—one that develops when the body stops producing insulin entirely.

For over a year, our son experienced unexplained weight loss, constant fatigue, and extreme thirst—classic warning signs, according to Health Line, that were initially overlooked. Since he was active, we assumed the weight loss was normal. By the time we received the diagnosis, his blood sugar levels were dangerously high, and we had to adapt to a whole new way of life overnight.

Now, with insulin therapy and careful monitoring, we’re learning to manage Type 1 diabetes. Our son is tracking his macros, understanding how to fuel his body during exercise and long workdays, and keeping his sugar levels stable—very similar to how I eat when in competition prep. As we navigate this adjustment, we hope to help others recognize early symptoms and understand this condition better.

The Realities of Living with Type 1 Diabetes

Managing Type 1 diabetes is a constant balancing act. Every meal, activity, and even stress level impacts blood sugar. It requires round-the-clock vigilance—monitoring levels, administering insulin, and adjusting for sudden highs and lows. There’s no break, but with the right tools and knowledge, it is manageable.

My sister was diagnosed with Type 1 diabetes at 11, so I grew up understanding how to support someone with this condition. Little did I know that experience would later help our own family make better diet and exercise choices.

The Importance of Early Detection

While early detection of Type 1 diabetes is vital, recognizing the warning signs remains just as important.Many adults are misdiagnosed with Type 2 diabetes before receiving a correct Type 1 diagnosis. Keeping good notes, asking questions, and learning more about diabetes can make a difference in managing the condition effectively.

If someone in your family is experiencing unexplained weight loss, extreme thirst, or unusual fatigue, don’t ignore it. Trust your instincts and seek medical advice. Too many people overlook these signs or mistake them for other conditions, making awareness even more essential.

Fostering a Healthier Relationship with Sugar

Living with Type 1 diabetes doesn’t mean eliminating sugar completely. Instead, it’s about understanding how different foods affect blood sugar and making informed choices. You can still enjoy sweet treats, but moderation and balance are key.

We’ve learned that sugar itself isn’t the enemy—it’s about managing intake in a way that keeps blood sugar levels stable. Education is key, and I encourage open conversations about nutrition, carb counting, and healthy eating with diabetes. If you're looking for delicious and diabetes-friendly sweet treat alternatives, check out my Substack, where I share recipes and tips for healthier indulgences.

Spreading Awareness and Supporting Others

This journey has shown us the realities of living with Type 1 diabetes—the constant monitoring, the adjustments, and the emotional toll it takes. But it has also shown us resilience, strength, and the power of education. By raising awareness, I hope to educate others about this often-misunderstood condition and support those facing similar challenges. No one should have to navigate this journey feeling lost or alone.

To all the parents out there facing a similar diagnosis: you are not alone. The more we talk about Type 1 diabetes, the more we can help others understand and support those living with this condition.

Let’s raise awareness and make sure that no one overlooks the warning signs like we once did. Early detection of Type 1 diabetes can save lives.